The Australasian Academy of Cerebral Palsy and Developmental Medicine
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Mealtime Study
Day overview


Presentation & focus
group highlights

Discussion group
summaries:
- Service Delivery
- Research possibilities
- Supports
- Interventions

AusACPDM Mealtimes Study Day

Discussion group summaries: Interventions
  • Emotional/cultural issues around feeding ie – parents’ feelings around food intake, nurturing and their parenting role – what are the differences, how can these be taken into consideration in determining interventions?
  • Limited research about interventions – need to be better described and researched
  • Use CP Register across states to follow up children with dysphagia
  • Overnight feeding – safety issues, what does it mean for families?
  • Presence of primitive reflexes and oral feeding – more refined predictive information about the relationships between oro-motor abilities, dysphagia and longer term health/quality of life outcomes
  • Rights of parents to make decisions about feeding which may impact (short or long term) on morbidity and mortality - interacts with the role of professionals to provide clear, evidence based and accessible information in a timely and sensitive way
  • Qualitative research

Development and support for a list serve ie: dysphagia issues. Could be used to:

  • Put up research questions
  • Who is doing what?
  • Have more and continuing forums