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Mealtime Study
Day overview
Presentation & focus
group highlights
Discussion group
summaries:
- Service Delivery
- Research possibilities
- Supports
- Interventions
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AusACPDM Mealtimes Study Day
Discussion group summaries: Interventions
- Emotional/cultural issues around feeding ie – parents’ feelings around food intake, nurturing and their parenting role – what are the differences, how can these be taken into consideration in determining interventions?
- Limited research about interventions – need to be better described and researched
- Use CP Register across states to follow up children with dysphagia
- Overnight feeding – safety issues, what does it mean for families?
- Presence of primitive reflexes and oral feeding – more refined predictive information about the relationships between oro-motor abilities, dysphagia and longer term health/quality of life outcomes
- Rights of parents to make decisions about feeding which may impact (short or long term) on morbidity and mortality - interacts with the role of professionals to provide clear, evidence based and accessible information in a timely and sensitive way
- Qualitative research
Development and support for a list serve ie: dysphagia issues. Could be used to:
- Put up research questions
- Who is doing what?
- Have more and continuing forums
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